HAPPY 1ST BIRTHDAY TO LIL MYRA

Today, Lil Myra turns ONE. HAPPY BIRTHDAY BABY MYRA..:)

We have celebrated an early birthday for her and DH. DH birthday was on 1st Nov and Myra is on 2nd Nov. We have a buffet dinner on last Sat @ Cinnamon Cafe, One World Hotel together with my family, my uncle and my MIL.

Then we have a cut cake celebration for DH & Myra on yesterday @ my parent house. And tonight I will give a dinner treat to DH, Sasha & Myra @ Bangsar Shopping Centre coz I have promised Sasha to buy her a cash register toy @ Mothercare/ELC, BSC where she saw the toy in the Mothercare/ELC catalog that posted to me last few days. Of course I will not miss out my Lil Myra present too.

We have a lots of pics taken this few days but I'm still waiting for DH to upload into my laptop. I will post the pic asap..:) Cya!

MY BIRTHDAY

It has been more than 2mths I haven't got time to really sit down and write my blog after my maid left for good on 10th July 2009. After she left, I handled 2 kiddos by myself and is really exhausting coz Sasha is so active and talkative where she will keep on asking you thousand of questions and also you have to tell her not to do this nor that. And my Lil Myra is 10.5 mths old now, she is so adventurous where she will crawl under the table, even sometimes like playing hide and seek with you coz she will MIA to no way in the house, she is teething too and she will bite anything such as toys, books, worse still is the table edges and chair legs too. I give her the name of RATATOULIE coz she bite like a rat with her 2 front teeth and she borned in the year of rat too. Now I'm going to be 1/2 dead soon coz she is crawling here and there and she is learning to walk too. I have to follow her up and down and front and back in the house. I'm using part time cleaner once a week to clean my house coz I really no time for myself too. My good friend of mine told me that I looked the same like my online store 24/7, haha..:)

I just celebrated my birthday yesterday coz now already 1.26am, just passed my birthday coz after 12am liao! Both kiddos are sleeping and I have some time for blogging now. I had my birthday dinner at Tony Roma's at Cinealeisure with DH, Sasha & Myra. Nothing special coz as we have kids where we really don't have our leisure time to have coffee chat or clubbing after dinner. After dinner we just took a short walk to Mothercare to buy some stuff for my 2 lil girls. My DH said why birthday mommy is buying gift to the kids and not vice versa, haha..:) Nevermind la coz I love buying stuff for both of them and I feel happy when shopping for them too..

I have to cut short coz going to sleep soon, and tomorrow morning have to wake up early due to the part time cleaner is coming to clean the house. I have some photos to share with you guys!!!

MAIDLESS SOON

I'm going to be maidless by this friday coz my indon maid is working for me for 5yrs is going home for good. So my life is like heir wire coz taking care both kiddos is not an easy task, futhermore I have to do the house chores and maintaining my e-store business too. I think at the moment I'm not going to hire any maid coz phobia getting those nuts maid like my previous cambodian maid. Maybe will take in a part time cleaner to come once a week if not my house will like spider web, haha...

I have asked Jenny to help me to sent few boxes to Sinthamani Homes twice yet I still have a lot used & new stuff that I don't want is lying around in my house. I think I should stop buying things from now on..:) So before my maid leave, I asked my maid to help me to pack everything up and courier to Sinthamani Homes again. This time a lot of adult clothings, comforter, kettle, thermo pot, bags and lots lots more. Hope these things are useful to them.

If you have any used/unused stuff or in monetary since they need monetary urgently to rebuilt the boys dorm after the roof leakage badly (http://www.sanctuaryofhope.blogspot.com/). You can issue the cheque to "SINTHAMANI DIVINE LIFE ASHRAMS". You can send to the below address where is the founder house address coz courier will not send to the Sinthamani Homes due to the inconvenient road access.

Attn: Mr. Praveedran (The Founder)

H/P: 016-9046358

No. 10, Block 9,

Jalan 7/16C, Rumah Awam,

Kawasan B, Jinjang Utara,

52100 Kuala Lumpur

MAY GOD BLESSED YOU!!!

KAI XIN'S IS IN SINGAPORE NOW

A good news to share with everyone, Baby Kai Xin's had managed to collected RM500K funds for her operation. Now she is in Singapore with her parents to get ready for her operation very soon. Hope to see your cutie pie face on your blog asap, http://www.kaixindevelopment.blogspot.com/

MAY GOD BLESSED YOU, BABY KAI XIN'S

SASHA VS MYRA

Sasha

Myra

Are they look alike when they are few months old? But when Sasha's grows older, her eyes became big and round. I'm not sure Myra eyes will look alike her "jie jie" or not when she grows, hehe..:)

LIL MYRA TURNS 8 MONTHS OLD

My Lil Myra turns 8mths old today. Here are some pics that taken 2 weeks ago at Kiz Sport when I brought Sasha & Myra with my maid along too.

Lil Myra is a sociable, happy, playful and cheeky baby. Every morning when DH goes to work, Lil Myra will give a big smile and plays with her daddy if she has awake. She can pushed herself up at the crawling position but she can't control her knee and legs to crawl forward. She still combating around with a very fast pace, haha..:)

I'm still breastfeeding her occasionally coz milk getting lesser, and then I added on 2x formula milk and 2x cereal per day. When everytime I cradle carry her, she will lean forward to my breast to look for milk. After bf her, she will blow "pooh pooh pooh" her saliva on my stomach or hands. So funny is she will not do that on my DH when DH offers her his hand.. She likes to put her face close to my face like velcro, and when she sees me for sure she will chase after me with screaming loudly eventhough someone is carrying her. I have to hide or else I can't do my work, haha..:)

So far she is quite easy to take care coz she likely cries and a happy go lucky baby. I just need to company her when she plays without carrying her to walk around but she will bullies DH, my maid or other people to carry her and have to walk around. What a Lil Rascal ???

SOMETHING FUNNY TO SHARE

I have received a call from my lil brother from overseas to ask me to check out this site http://www.vaho.ws/ that selling recycled handbags. I found a write up about people telling their recycled experiment, and I found this pic. I want to share with you guys who reading my blog coz is makes me feel happy after seeing it coz is so cute. This person who invented the bra pot is really a genius.

Since I'm breastfeeding now and I'm only using breasfeeding bras, I think I can take out my pre-pregnancy bra which I'm not using anymore to grow some plants for at my home too, muahaha..:)

SOMETHING SAD TO SHARE

Kai Xin is so cute with her big round eyes and chubby face before her illness getting worse.

You can see how Kai Xin is suffering now.

QUOTE: "I think I should share my story and what happened in my life since past few months to you all who as parent, going to be parent or will be parent in future.

My daughter kai xin has prolonged jaundice. When she is 3 months plus old, went for blood test and detected that she has biliary atresia, bile flow from the liver to the gallbladder is blocked. Doc told us that she has to immediately go for operation else her liver will be failure. We was informed that the best time to operate is six weeks after birth. However, when my daughter went for the operation she was 110 days age which means the success of the procedure is poor. Before the operations, the Doc told us that if she detected in later which is 4 -5 months age, they wouldn't advice or proceed for operations because the liver already failure. Doc also told us that if the operation completed within an hour, that means they can't proceed the procedure meanings her liver has failure. Although we are late, we cannot give out any chances to safe her life. So, she went for major operation known as kasai procedure in sunway medical center in Feb. We went thru very hard time and pray hard especially waiting outside of the operation room. The 1st hour is terrible to pass because we hope that the operation can be proceeding. God blessing the surgeon can proceed the operation for my daughter which took 3-4 hr. After the procedure, my daughter was in CCU one night and then change to normal wad after 24 hrs and stayed in the hospital for 9 days. Although we are very tired but most important and luckily the surgeon still can continue the kasai procedure for her to safe her.

After the operations, her motions slowly change from pile color to light yellow. Her jaundice still there. We went for follow up check up every week. However, the improvement is slow and Doc told us that if after two months from the operation, her jaundice still yet disappears and motion color not consistent with normal color meaning not good. We can't just wait until the second month check up again for the result. Eric's colleague suggests seeking for 2nd opinion and her relative who is Prof in HUKM has introduced a Prof of Paediatrics Gasteroenterology/ Hepatology and Nutrition in UM to us. It is not easy to meet up those Prof especially in UH without appointment. Thanks god, Eric managed to find a contact number via internet and 1st time call managed to talk to the Prof Lee via phone. He advised to bring my daughter medical history to meet him. When Eric 1st visit to UH, the queue is so long and have to wait 40+ number only will be his turn. Eric talks to the nurses that just want to meet up with the Prof for while as the Prof asked him to see him. End up the nurse as him to sit at somewhere where the Prof will bypass. Luckily Eric had seen his picture on internet then can recognized him and approached him. The Prof Lee is very nice and sits down listen to Eric regarding my daughter’s condition. Finally, we managed to make our 1st visit to Prof Lee in UMSC is 6 weeks after her operation. Upon examination, she still has moderate jaundice and her stools remained pale. Her liver was enlarged. Doc told us that not to give out as there are babies with biliary atresia can be recovered with strong nutrition and advice us not to discuss about liver transplant at this moment. When we heard that still got chance to recover, we are so happy. She has not been gaining weight properly after the surgery. Therefore, Prof has introduced her to apply vitamin supplements vitamins, vitamin D, vitamin K, vitamin E, UDC, MCT Oil, a special die formula (Alimentum from Abbott) which taste is terrible for my daughter as this is the best formula which can help her absorb easily. This formula is not easy to find and limited, only available on selected Jusco. We have hard time to feed her because the taste is not nice. Subsequently, we brought kai xin for check up weekly at UMSC. Her weight slowly has gained compared to previous and little improvement on her jaundice. The Prof Lee is the best doctor that I never seen before. He provided us many advice and spirit support. We can contact him anytime as and when we has any quiry.
Unfortunately, kai xin was admitted to UMSC hospital on April 21 for an episode of high fever for 8 days due to infection on her liver. Based on ultrasound, she is showing features of liver cirrhosis with minimal ascites. That means she is showing signs of liver failure. Liver transplant is required to save her. Baby with biliary atresia who has an unsuccessful kasai operation usually die of liver cirrhosis or complication at median age of 15 months. Therefore, kai xin needs an urgent assessment for suitability for liver transplant.

The only available liver transplant service available in Malaysia is at selayang hospital and usually will only accept children with body weight of 10 kg. However, kai xin is highly unlikely to achieve that kind of weight to enable her to be listed for liver transplant. Another hospital that can be considered is National University Hospital at SG. The liver transplant team comprised of highly skilled, multi-disciplinary team. Most important they generally accept baby who need liver transplant with weight 8kg. In order for her to gain weight adequately, Prof has introduced nocturnal feeding via nasagastric tube. We have to feed her every 3 hours using the NG tube as she started ill to drink milk. She must gain weight then only can go for the liver transplant.

We had decided to go to NUH for the liver transplant although the cost is very high about SGD 200K. Liver transplant is the only option for her to survive. We contacted and liver transplant coordinator in NUH and make appointment with them. We had visited to NUH on last week. We met up with the Dietitian, Liver coordinator, Hepatology specialist and Surgeon at NUH within half day. They are very professional and performed the first time clinical check up for my daughter. The pre-assessment for liver transplant is required to be arrange as soon as possible for my daughter and me or Eric who to be the suitable donor for kai xin. We have arranged to go to NUH for pre-assessment which required 1 week admission in hospital on early june 2009.

Unluckily, she sudden has fever again on last Friday and admitted to hospital again. Based on latest blood test result, her bilirubin has increase again. Her stomach getting bigger and bigger from day to day. We are very worry on her. She needs to stay at hospital a week to clear the infection. We hope she can recover from infection soon then we can make it for the next week pre-assessment in NUH. Else, we have to reschedule to another week to SG. Nothing to gain while waiting. The risk for her is variable and increasing.

As parent, we hope ourselves suffer rather than she suffer. She is a fighter. Since birth until now, she has been performed many rounds blood tests, She is a baby girl likes to talk and smile. She brings happiness to us. Liver transplant is a big challenge and long journey we need to go thru with her. We pray hard for her. We really hope she can be healthy baby/kid like others. No matter how tough we had went through and need to go thru in future, we strongly believe she can overcome this.

Friends, please pray for my daughter. She need wishes and lucks from many people. Many many thanks and much appreciated from my family" UNQUOTE Sincerely, Huey Jing & Eric

For follow-up of Kai Xin's latest development, kindly visit here.

Dear fellow readers,
A fund has been set-up for Kai Xin with the following bank account details. For those who are keen, kindly deposit your donations in favour of:

Name: Loke Kai Xin

Maybank Berhad A/C No.: 1-14013-213313Note:

If you are transferring via ATM or Maybank2u, you will see the name Lee Huey Jing appearing for confirmation instead.

Thank you for your kind donations.

Remarks: I copy and paste the above post from Jenny of http://www.sanctuaryofhope.blogspot.com/. I hope that anyone who read this post, can give a helping hands to this lil baby. I really can feel the pain and suffer that a few mths old baby has to go thru as we also a mother for our children. We love our children so much and I can imagine how this lil baby's parent feels when seeing their own baby in pain.

LOST MY BLOGGER BUDDIES LINK

My niece changed my blog template and accidentally deleted all my blogger buddies link and some pics too. So please forgive me for not viewing your blog for time being till I found your site again.

If possible you can drop by my comment box to leave me your site name, then I can save the time to find one by one everyday.

BLOG ON HOLIDAYS

Is about 2mths plus I have not been blogging, just give a break to my blog for a holiday, haha... Nowadays really tied up with lil Myra and Sasha, my online business and also I'm running here & there to settle all my things before my maid going home for good by early July. I really hope one day is 48hrs so I can do more things in a day. By July I'm maidless, even no time to blog hopping or even go loo too.

I have a lot of my 2 lil cutie pies backlog pics and their milestone stories to post, sigh! what am I doing? I think maybe I spent too much time on unecessary online searching where to buy clothings for my 2 rascals, hehe..:)

I have to catch up the time now before I forgot those stories to post..